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Kabuki Syndrome CoRDS Cast
Dr. Olaf Bodamer (Boston Children's Hospital) and Rene King (All Things Kabuki) discuss Kabuki Syndrome with Austin Lechtner (Sanford...
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All Things Kabuki
May 10, 20191 min read
Kabuki Adult, Andrea Sultan, makes the news!
Kabuki Adult, Andrea Sultan, is featured on her local news. Watch the video here: https://www.wjhl.com/local/river-s-way-bristol-business...
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All Things Kabuki
Apr 20, 20191 min read
Kabuki Mom Runs the Boston Marathon
Kabuki Mom, Betsy Jackson, rocked the 123rd Boston Marathon on April 15th, raising more than $10,000 for Kabuki Syndrome research! We’re...
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Serena Burks
Sep 26, 20184 min read
All Things Kabuki Has Successful Family Gathering in Cleveland, Ohio
All Things Kabuki hosts second annual family gathering in Cleveland, Ohio. Background on event, speakers and awards.
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Rene King
Sep 12, 20181 min read
Estrella Family Final Expense Fundraiser
Olivia Estrella was born on October 20, 2016 and passed away on August 3, 2018. All Things Kabuki is accepting donations on behalf of the...
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Serena Burks
Sep 11, 20182 min read
Functional Formularies Shares Elijah VanDyke's Success Story
Functional Formularies focuses on making a blenderized diet using whole foods instead of chemicals. This is the success story of Elijah VanD
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Rene King
Jul 21, 20181 min read
ATK Supporters Raise $30,000 for Research!
ATK would like to thank the community for their efforts to meet a $30,000 research goal! We exceeded our goal in less than one month! Dr....
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Rene King
Jul 21, 20181 min read
ATK 2018 Family Gathering a Success!
The 2018 ATK Family Gathering & Conference was held on July 13th and 14th in Cleveland, Ohio. We were honored to host 59 families...
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Rene King
Mar 1, 20181 min read
Australian Hospital Shares a Kabuki Story on Facebook
Perth Children's Hospital Foundation, located in Subiaco, Western Australia, has a series on their Facebook page titled #stitchesstories
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Rene King
Feb 28, 20181 min read
Rare Disease Day - Cristian Denton Gets a Shoutout From Georgia News Anchor
Cristian Denton, age 8, resides in the Atlanta, Georgia area. Today, on Rare Disease Day, he received a special shoutout from local news...
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Rene King
Feb 27, 20181 min read
Kabuki Syndrome Receives Recognition in Italy
While Kabuki syndrome is a rare disease, it's gained more traction recently. There are research studies being done in the US, and doctors...
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Rene King
Dec 15, 20171 min read
Isabella Pape Receives Liver Transplant, Meets Members of Milwaukee Bucks
The holidays are supposed to be a time of celebration, eating too much, giving back and spending time with family. But for Katie Pape,...
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