top of page
Search


We Stand With Rare Booster now available
ATK's 2022 Rare Disease Month booster is live now through February 2nd. Anticipated delivery date is February 18th. We did not have a lot...
Rene King
Jan 24, 20221 min read
35 views
0 comments


2022 Clinical Flyer
ATK's 2022 Clinical Flyer is now available to download or share with medical providers / offices in your area. PDF is available at...
Rene King
Jan 24, 20221 min read
69 views
0 comments


Family Spotlight | January 2022
Meet our sweet friend, Zia-Louise of New Zealand. You can read her about her journey with Kabuki Syndrome at: allthingskabuki.org/zia-lou...
Rene King
Jan 8, 20221 min read
46 views
0 comments


Takeda Survey Results Published
Did you participate in Takeda Pharmaceutical's 2018 survey? They recently shared the publication related to that data with us. You can...
Rene King
Jan 8, 20221 min read
41 views
0 comments


Hypotonia and Kabuki Syndrome
Have you participated in the Hypotonia research opportunity at BCH? It's not too late! Here's another publication we received, by some of...
Rene King
Jan 8, 20221 min read
46 views
0 comments


ATK Closed Due To Severe Weather
All Things Kabuki is currently closed due to severe weather conditions with frequent power outages. The Mat-Su Borough Mayor has declared...
Rene King
Jan 3, 20221 min read
25 views
0 comments


Serra Kia (AL) Supports KS Awareness
You never know who you might touch by simply sharing your story! Kabuki Dad, Jeff Clay, was elated when he learned that his employer...
Rene King
Dec 8, 20211 min read
65 views
0 comments


Kabuki Syndrome in the News | Canada
Check out this fabulous article, featured in our December newsletter! The writer, ATK volunteer Randy Pinsky, shared this write up on...
Rene King
Dec 8, 20211 min read
45 views
0 comments


Coffee & Cookies ... for a cause!
THEY'RE BACK! Kabuki Coffee and Chocolate Covered Oreos are now back in stock! Many options to choose from for local (Alaska delivery)...
Rene King
Dec 3, 20211 min read
85 views
0 comments


One Rare Heart features Kabuki Syndrome
One Rare Heart podcast publishes it's latest episode exploring Kabuki Syndrome. Derren dedicates this episode to his beautiful daughter,...
Rene King
Oct 4, 20211 min read
36 views
0 comments


Zebra Gnomes available now!
These adorable, custom made gnomes are available in the ATK store while supplies last. Why a zebra pattern rather than green? The zebra...
Rene King
Oct 1, 20211 min read
44 views
0 comments


Rare is Beautiful is BACK!
ATK's 2013 Rare is Beautiful shirt is back, with a twist. :) This booster is open through Sunday, September 26th. Orders should be at...
Rene King
Sep 15, 20211 min read
38 views
0 comments


Upcoming Webinar: Neuropsychology in KS
You’re invited to attend this free webinar hosted by the Roya Kabuki Program! The More You Know: Neuropsychology in Kabuki Syndrome...
Rene King
Sep 9, 20211 min read
25 views
0 comments


Team ATK is growing!
I am incredibly grateful for all of the individuals that selflessly give to the Kabuki Syndrome community through ATK. Please take a...
Rene King
Sep 9, 20211 min read
27 views
0 comments


Tail Lights for Bryce Memorial Cruise Raises $705 for ATK
Mike's American Muscle Cars and Mobay Cruise for a Cause Gulf Coast hosted the 2021 Inaugural Tail Lights for Bryce Memorial Cruise-In on...
Rene King
Aug 31, 20211 min read
53 views
0 comments


Peace Love Cure Stickers
Peace Love Cure Kabuki Syndrome stickers are now available on our website. Stickers are available for US and International shipping. NOW...
Rene King
Aug 6, 20211 min read
22 views
0 comments


July Spotlight: Kai Lopez
July's Spotlight story is live! We are pleased to introduce you this adorable little guy. Meet ... Kai! Read his story at:...
Rene King
Jul 5, 20211 min read
64 views
0 comments


Kabuki Syndrome Webinars are LIVE!
Links to the following webinars are now live on our website at allthingskabuki.org/webinars. > The More You Know: Genetic Testing > The...
Rene King
Jul 1, 20211 min read
31 views
0 comments


The More You Know: Genetic Testing
The Kabuki Syndrome community is invited to join us for a 30 minute Zoom/Webinar reviewing all things related to genetic testing, with a...
Rene King
May 4, 20211 min read
50 views
0 comments


Sibling Support Discussion 2
We had a little hiccup with our last planned session, so this is Take 2! Parents and Siblings of individuals with Kabuki Syndrome are...
Rene King
May 4, 20211 min read
43 views
0 comments
bottom of page