top of page
.png)
Search
Rene King
Jan 24, 20221 min read
We Stand With Rare Booster now available
ATK's 2022 Rare Disease Month booster is live now through February 2nd. Anticipated delivery date is February 18th. We did not have a lot...
33 views0 comments
Rene King
Jan 24, 20221 min read
2022 Clinical Flyer
ATK's 2022 Clinical Flyer is now available to download or share with medical providers / offices in your area. PDF is available at...
69 views0 comments
Rene King
Jan 8, 20221 min read
Family Spotlight | January 2022
Meet our sweet friend, Zia-Louise of New Zealand. You can read her about her journey with Kabuki Syndrome at: allthingskabuki.org/zia-lou...
46 views0 comments
Rene King
Jan 8, 20221 min read
Takeda Survey Results Published
Did you participate in Takeda Pharmaceutical's 2018 survey? They recently shared the publication related to that data with us. You can...
41 views0 comments
Rene King
Jan 8, 20221 min read
Hypotonia and Kabuki Syndrome
Have you participated in the Hypotonia research opportunity at BCH? It's not too late! Here's another publication we received, by some of...
46 views0 comments
Rene King
Jan 3, 20221 min read
ATK Closed Due To Severe Weather
All Things Kabuki is currently closed due to severe weather conditions with frequent power outages. The Mat-Su Borough Mayor has declared...
25 views0 comments
Rene King
Dec 8, 20211 min read
Serra Kia (AL) Supports KS Awareness
You never know who you might touch by simply sharing your story! Kabuki Dad, Jeff Clay, was elated when he learned that his employer...
64 views0 comments
Rene King
Dec 8, 20211 min read
Kabuki Syndrome in the News | Canada
Check out this fabulous article, featured in our December newsletter! The writer, ATK volunteer Randy Pinsky, shared this write up on...
42 views0 comments
Rene King
Dec 3, 20211 min read
Coffee & Cookies ... for a cause!
THEY'RE BACK! Kabuki Coffee and Chocolate Covered Oreos are now back in stock! Many options to choose from for local (Alaska delivery)...
85 views0 comments
Rene King
Oct 4, 20211 min read
One Rare Heart features Kabuki Syndrome
One Rare Heart podcast publishes it's latest episode exploring Kabuki Syndrome. Derren dedicates this episode to his beautiful daughter,...
36 views0 comments
Rene King
Oct 1, 20211 min read
Zebra Gnomes available now!
These adorable, custom made gnomes are available in the ATK store while supplies last. Why a zebra pattern rather than green? The zebra...
39 views0 comments
Rene King
Sep 15, 20211 min read
Rare is Beautiful is BACK!
ATK's 2013 Rare is Beautiful shirt is back, with a twist. :) This booster is open through Sunday, September 26th. Orders should be at...
36 views0 comments
Rene King
Sep 9, 20211 min read
Upcoming Webinar: Neuropsychology in KS
You’re invited to attend this free webinar hosted by the Roya Kabuki Program! The More You Know: Neuropsychology in Kabuki Syndrome...
25 views0 comments
Rene King
Sep 9, 20211 min read
Team ATK is growing!
I am incredibly grateful for all of the individuals that selflessly give to the Kabuki Syndrome community through ATK. Please take a...
27 views0 comments
Rene King
Aug 31, 20211 min read
Tail Lights for Bryce Memorial Cruise Raises $705 for ATK
Mike's American Muscle Cars and Mobay Cruise for a Cause Gulf Coast hosted the 2021 Inaugural Tail Lights for Bryce Memorial Cruise-In on...
53 views0 comments
Rene King
Aug 6, 20211 min read
Peace Love Cure Stickers
Peace Love Cure Kabuki Syndrome stickers are now available on our website. Stickers are available for US and International shipping. NOW...
22 views0 comments
Rene King
Jul 5, 20211 min read
July Spotlight: Kai Lopez
July's Spotlight story is live! We are pleased to introduce you this adorable little guy. Meet ... Kai! Read his story at:...
64 views0 comments
Rene King
Jul 1, 20211 min read
Kabuki Syndrome Webinars are LIVE!
Links to the following webinars are now live on our website at allthingskabuki.org/webinars. > The More You Know: Genetic Testing > The...
31 views0 comments
Rene King
May 4, 20211 min read
The More You Know: Genetic Testing
The Kabuki Syndrome community is invited to join us for a 30 minute Zoom/Webinar reviewing all things related to genetic testing, with a...
50 views0 comments
Rene King
May 4, 20211 min read
Sibling Support Discussion 2
We had a little hiccup with our last planned session, so this is Take 2! Parents and Siblings of individuals with Kabuki Syndrome are...
43 views0 comments
bottom of page