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Rene King
Mar 27, 20201 min read
Team Roya's Response to KS & COVID-19
We asked, they answered! Please follow the link below to read the Roya Kabuki Programs response to your questions about COVID-19 and...
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Rene King
Mar 22, 20201 min read
Kabuki Sib Aims to be a Blessing During Quarantine
ATK Junior Volunteer (and Kabuki Syndrome Sibling) Camila is using her quarantine time to bless Kabuki Kids and their siblings through...
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Rene King
Mar 8, 20201 min read
2020 Conference & Coronavirus
We have distributed this notice on our social media pages, but for those without ... We are following the news and in contact with our...
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Rene King
Mar 8, 20201 min read
Todd Family Pays It Forward Raising $1,700 for ATK Conference
We first met the Todd Family in Cleveland, Ohio at the 2018 ATK Kabuki Syndrome Conference and Family Gathering. Their son, Kevin, was...
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Rene King
Mar 8, 20201 min read
Erin Cho & Vive Fitness Raise $1,700 for ATK
They say, "It takes a Village" to raise a child; the same can be said when it comes to running and fundraising for an all-volunteer...
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Rene King
Feb 14, 20201 min read
NORD wants to hear from you!
A message from the National Organization for Rare Disorders! Have you sought out-of-state care through Medicaid? Let us know! NORD is...
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Rene King
Feb 11, 20201 min read
Ketones & Mouse Models of Kabuki Syndrome
Watch this Facebook Live Q & A with ATK and Dr. Dominic D'Agostino on September 12, 2019. Due to connectivity issues, we suggest you...
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Rene King
Feb 11, 20201 min read
Raising Awareness for Kabuki in the UK
On August 5, 2019 the Bexley Times shared an inspiring story about the Johnston family and their efforts to promote awareness and support...
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Rene King
Jan 11, 20201 min read
Emmett Highshoe in the News!
Emmett is a sweet 2-year-old Kabuki Kid also diagnosed with HLHS (hypoplastic left heart syndrome). Emmett requires oxygen 24-7. Check...
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All Things Kabuki
May 10, 20191 min read
Kabuki Syndrome CoRDS Cast
Dr. Olaf Bodamer (Boston Children's Hospital) and Rene King (All Things Kabuki) discuss Kabuki Syndrome with Austin Lechtner (Sanford...
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All Things Kabuki
May 10, 20191 min read
Kabuki Adult, Andrea Sultan, makes the news!
Kabuki Adult, Andrea Sultan, is featured on her local news. Watch the video here: https://www.wjhl.com/local/river-s-way-bristol-business...
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All Things Kabuki
May 3, 20191 min read
Pauline Saladin Joins the ATK Board!
Pauline Saladin joins the All Things Kabuki Board of Directors as Secretary. Pauline has been an ATK volunteer since its inception. We're...
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All Things Kabuki
Apr 20, 20191 min read
Kabuki Mom Runs the Boston Marathon
Kabuki Mom, Betsy Jackson, rocked the 123rd Boston Marathon on April 15th, raising more than $10,000 for Kabuki Syndrome research! We’re...
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All Things Kabuki
Apr 18, 20191 min read
President Trump enacts the ACE Kids Act
President Donald J. Trump signed the bipartisan Advancing Care for Exceptional Kids Act of 2019 (ACE Kids Act) into law. Read the Press...
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Serena Burks
Sep 26, 20184 min read
All Things Kabuki Has Successful Family Gathering in Cleveland, Ohio
All Things Kabuki hosts second annual family gathering in Cleveland, Ohio. Background on event, speakers and awards.
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Rene King
Sep 12, 20181 min read
Estrella Family Final Expense Fundraiser
Olivia Estrella was born on October 20, 2016 and passed away on August 3, 2018. All Things Kabuki is accepting donations on behalf of the...
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Serena Burks
Sep 11, 20182 min read
Functional Formularies Shares Elijah VanDyke's Success Story
Functional Formularies focuses on making a blenderized diet using whole foods instead of chemicals. This is the success story of Elijah VanD
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Rene King
Jul 21, 20181 min read
ATK Supporters Raise $30,000 for Research!
ATK would like to thank the community for their efforts to meet a $30,000 research goal! We exceeded our goal in less than one month! Dr....
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Rene King
Jul 21, 20181 min read
ATK 2018 Family Gathering a Success!
The 2018 ATK Family Gathering & Conference was held on July 13th and 14th in Cleveland, Ohio. We were honored to host 59 families...
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Rene King
Mar 1, 20181 min read
Australian Hospital Shares a Kabuki Story on Facebook
Perth Children's Hospital Foundation, located in Subiaco, Western Australia, has a series on their Facebook page titled #stitchesstories
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