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Kabuki Syndrome at the NORD
2020 & 2022 Summits

The Roya Kabuki Program, in collaboration with All Things Kabuki, presented these posters at the 2020 National Organization for Rare Disorders 2020 virtual Summit and 2022 live Summit.
 
Our hope is that these posters bring a broader awareness of Kabuki Syndrome to the rare disease and medical communities. Additionally, they highlight the benefit of collaboration between both academia and patient communities.  To learn more about the Roya Kabuki Program at BCH, click here. To view these posters in PDF, follow these links: 2020 and 2022
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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.

© 2013-2025 ALL THINGS KABUKI

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