President Donald J. Trump signed the bipartisan Advancing Care for Exceptional Kids Act of 2019 (ACE Kids Act) into law. Read the Press Release from the Children's Hospital Association here: https://www.childrenshospitals.org/Newsroom/Press-Releases/2019/President-Trump-Enacts-the-ACE-Kids-Act.
Learn more about this life-changing law for rare disease patients here: https://www.childrenshospitals.org/Issues-and-Advocacy/Children-With-Medical-Complexity/Talking-Points/ACE-Kids-Act-Resource-Center.
ATK would like to thank all the families that shared their stories.