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President Trump enacts the ACE Kids Act


President Donald J. Trump signed the bipartisan Advancing Care for Exceptional Kids Act of 2019 (ACE Kids Act) into law. Read the Press Release from the Children's Hospital Association here: https://www.childrenshospitals.org/Newsroom/Press-Releases/2019/President-Trump-Enacts-the-ACE-Kids-Act.

Learn more about this life-changing law for rare disease patients here: https://www.childrenshospitals.org/Issues-and-Advocacy/Children-With-Medical-Complexity/Talking-Points/ACE-Kids-Act-Resource-Center.

ATK would like to thank all the families that shared their stories.

 
 
 
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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.

© 2013-2025 ALL THINGS KABUKI

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