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Kabuki Syndrome Registry is Live

Writer's picture: Rene KingRene King
Aug 1, 20221 min read


All Things Kabuki and the National Organization for Rare Disorders launched the first-ever patient registry for Kabuki Syndrome today, August 1, 2022. Caregivers and patients of clinically and genetically diagnosed patients are invited to participate in this research effort. Please see ATK and NORD's joint Press Release below. For additional information visit our website at allthingskabuki.org/registry.



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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.

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