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Webinars 

The following webinars are about and/or relevant to Kabuki Syndrome and those affected by rare disease. Please note: These webinars are for informational purposes only and not intended to be viewed as medical advice. 

Webinar | The More You Know: Genetic Testing
Host: Dr. Olaf Bodamer, Roya Kabuki Program 
Date: May 7, 2021

Webinar | The More You Know: Clinical Trials
Host: Dr. Olaf Bodamer, Roya Kabuki Program
Date: June 4, 2021

Webinar | Kabuki Syndrome: Transforming the Future
Host: Boston Children's Hospital
Featured Speaker: Dr. Olaf Bodamer, Roya Kabuki Program Director
Date: June 10, 2021

Webinar | The More You Know: Neuropsychology in Kabuki Syndrome
Host: Dr. Benjamin Goodlett, Roya Kabuki Program
Date: September 17, 2021

Podcast | Kabuki Syndrome - "I Sing The Body Eclectic"
Host: Derren Raser, One Rare Heart
Date: October 4, 2021

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EIN #: 47-5441487
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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.

© 2013-2025 ALL THINGS KABUKI

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