top of page
Webinars 

The following webinars are about and/or relevant to Kabuki Syndrome and those affected by rare disease. Please note: These webinars are for informational purposes only and not intended to be viewed as medical advice. 

Podcast | CoRDS Cast - Kabuki Syndrome
Host: Austin Lechner, Sanford Research / CoRDS
Date: March 1, 2019

Webinar | The More You Know: Genetic Testing
Host: Dr. Olaf Bodamer, Roya Kabuki Program 
Date: May 7, 2021

Webinar | The More You Know: Clinical Trials
Host: Dr. Olaf Bodamer, Roya Kabuki Program
Date: June 4, 2021

Webinar | Kabuki Syndrome: Transforming the Future
Host: Boston Children's Hospital
Featured Speaker: Dr. Olaf Bodamer, Roya Kabuki Program Director
Date: June 10, 2021

Webinar | The More You Know: Neuropsychology in Kabuki Syndrome
Host: Dr. Benjamin Goodlett, Roya Kabuki Program
Date: September 17, 2021

Podcast | Kabuki Syndrome - "I Sing The Body Eclectic"
Host: Derren Raser, One Rare Heart
Date: October 4, 2021

bottom of page